through what's next.
If you or a loved one have been diagnosed with polycythemia vera (PV), your first thought might be "What's next?" PV is a rare disease that most people have never heard of. It can be lonely to receive a diagnosis like this. Our message to you is "We know it feels lonely, but you're not alone." And we want to help you as you embark on what's next.
Knowledge is power. Our goal is to give you information so you know the facts about PV, know the short- and long-term risks, and get to know other patients who understand what you're going through. You can also record personal time capsules as a way to make commitments to yourself as you manage your PV.
We know so many things can feel out of control with a diagnosis like this, and we want to empower you to help control what you can. We want you to know as much as possible about PV so you can have proactive, productive conversations with your healthcare team about what's next. Together, you can work toward a treatment approach that aligns with your health needs and goals.