from those who have been there.
Because PV is a rare cancer, you may not know anyone else living with it. As you decide what’s next for you, it may be helpful to hear from others who have been living with PV. You’re not alone—they’re proof.
In your journey with PV, there are experiences and information that can bring about change. Hear others describe moments that impacted their PV experience.
Perspectives On PV
We asked patients who’ve had PV for years to reflect on their experiences and share their perspectives with patients who’ve been diagnosed more recently.
Learn to Live With PV
Research, a trusted healthcare team and in-depth information. One experienced PV patient shares his perspectives for newly diagnosed patients.
GET TO KNOW
organizations who can help.
MPN Research Foundation
Committed to standing with you in the fight against polycythemia vera (PV), essential thrombocythemia (ET) and myelofibrosis (MF) – the group of blood cancers collectively known as myeloproliferative neoplasms.LEARN MORE >
Leukemia and Lymphoma Society
At the forefront of the fight to cure cancer. They are the largest non-profit dedicated to creating a world without blood cancers. With groundbreaking research, pioneering many of today’s most innovative approaches.LEARN MORE >
MPN Advocacy & Education International
Dedicated to providing the knowledge, support, and resources patients will need as they adjust to living with a MPN through educational symposia, webcasts, collateral, and direction to people, resources, and other organizations that can help.LEARN MORE >
MPN CANCER CONNECTION
MPC-CC is PV Reporters non-profit sister organization, providing a wide range of resources to patients and caregivers.LEARN MORE >
MPN Education Foundation
This foundation includes detailed information about PV and related diseases, as well as access to support groups and other resources.LEARN MORE >
Devoted to providing patients and care partners dealing with cancer and other serious conditions with timely, credible, and detailed information that informs the quest for the right treatment at the right time, supporting the return to or maintenance of good health.LEARN MORE >
PV Reporter was created to provide "easy access" to pertinent information on Polycythemia Vera (PV), Essential Thrombocythemia (ET), and Myelofibrosis (MF).LEARN MORE >